Skip to content
Home
About
Our Strategy
Annual report and impact
Meet the team
Partnerships, memberships and affiliations
Our Story
News & Updates
Contact
Shop
Make a donation
Home
About
Our Strategy
Meet the team
Annual report and impact
Partnerships, memberships and affiliations
Our Story
Join our team
Support & Information
About SMA
Recently Diagnosed with SMA
Support for you
SMA UK grants for the Community
Rarer Forms of SMA
Our Information Service
Professional Training and Upskilling
Treatments & Research
SMA Drug Pipeline
Access to Treatment
Nusinersen (Spinraza)
Risdiplam (Evrysdi)
Zolgensma (Onasemnogene Abeparvovec)
Drugs Currently Being Tested in Clinical Trials
Measures Used to Assess a Drug’s Effectiveness
Clinical, Innovative, & Basic Research
Treatment Approaches
Advocacy & Campaigning
Newborn Screening for SMA
SMA Care UK
Advocacy for Access to Treatments
National Strategies, Campaigns and Consultations
Priorities for Adults
SMA Awareness
Living with SMA
Children (0-12 years) Living with SMA
Teenagers (13-17 years) Living With SMA
Adults Living with SMA
Family and Friends
Connect with the Community
Community Networks
Community Podcasts & Videos
Community Voices
Community Events
Other Ways to Connect
Our Newsletter
Support SMA UK
Donate
Fundraise for Us
Become a Corporate Supporter
In Memory
Fundraising Tips & Resources
How your donation makes a difference
Be Inspired by Others
Contact the Fundraising Team
News
Shop
Contact
Make a donation
Home
»
Living with SMA
»
Family and Friends
Family and Friends
Family and Friends
Challenges and support
Talking to children about SMA
Other useful information