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These pages are written for you as an adult who has SMA and hopefully cover many of the topics that might be of interest. They give you some basic information, provide you with links to other useful websites and organisations, and include tips and experiences directly from others. If you find anything has changed, a link doesn’t work or would like to share your experience to help others, please email:

RL 4

Health & wellbeing



Image shows a lady, who has SMA, sitting in her wheelchair at the kitchen table.

Life in General

man and dog

Personal Life

RL 5

Transport, Leisure & Holidays

out in cafe

Financial & PA Support