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SMA Care UK
SMA Care UK
SMA Care UK is a 3 -year project established by clinicians and patient groups to update and implement UK Standards of Care for people of all ages living with SMA.
What SMA Care UK is and why there is a need for this project.
Meet the team
Our team brings together dedicated expert SMA clinicians, researchers and community advocates working collaboratively to update and implement UK Standards of Care, to ensure people of all ages living with SMA receive consistent, high-quality care.
Our Care Working Groups
These groups of healthcare professionals and patient representatives address each area of care. Five have been formed in the first instance: bone health, hip management, respiratory care, spine management and transition to adult care.
News & updates
Read the latest news and updates about the SMA Care UK project
For healthcare professionals
Evidence and consensus-based clinical recommendations for spinal muscular atrophy (SMA) care
For people living with SMA and their caregivers
Our partners & funders
SMA Care UK is funded by Biogen, Novartis, Roche and SMA UK and delivered in partnership with clinical, research, and patient organisations.
The development of the SMA Care UK project has been partly funded by a grant from Roche Products Ltd and Biogen. Both parties have had no control or influence over the information / content included on this website section, unless where stated.
