These pages are written for you as a parent or guardian of a child who has SMA. To make it easier to read we mostly just say ‘parent’. The pages cover many of the wide range of topics you are likely to come across as your child grows. They give you some basic information and links to useful websites and organisations. They include tips and experiences from families. If you see anything that is not correct, a link that does not work or you would like to share your experience to help others, please email: information@smauk.org.uk