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Help us raise £40,000!

To help us to continue our vital work, we are launching our ’40 for 40’ Challenge with forty fundraising ideas set for 2025 aiming to raise £40,000!

There is something for everyone to get involved in, from our virtual event, Marathon in May: Big 40, to our Daring Dive skydive in June or just simply donate to our fundraising page!

Take a look here! >
#40 for 40

Community Support

Since 1985, we have worked with the SMA Community to ensure that everyone affected by SMA has access to the best care, support and treatments and that research continues to bring much needed breakthroughs.

Our Community Support Team can provide both practical and emotional support.

Contact our Community Support Team >
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Find out more about the work we do

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Our new four year strategy

Our four year strategy aims to build on our strong foundations, experiences and expertise to ensure we deliver the best outcomes for the SMA Community.

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X8 off road wheelchair for hire!

We are delighted to be able to offer the SMA Community a new X8 off road wheelchair to hire for free. Find out more here.

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SMA Care UK

SMA Care UK is a 3 -year project established by clinicians and patient groups to update and implement UK Standards of Care for people of all ages living with SMA.

Rareminds

Counselling service

SMA UK is working in partnership with Rareminds to offer a free, confidential counselling service for those affected by SMA aged 18+.

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SMArt Moves Grant

Our SMArt Moves Grant is open for applications. This grant can assist the SMA Community in purchasing mobility equipment and wheelchairs.

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FlexiGrants

SMA UK’s FlexiGrants are two grant schemes that help fund travel to hospital appointments and small pieces of equipment

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Fundraising

28/5

Giles’ Epic Capital to Capital Cycle

29/4

Mark’s Boxing Challenge for SMA UK

7/8

Riding a Mile for every Child : Ride Ireland

View all Fundraising >
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News

24/6

Hattie and James share their son Theo’s story about his SMA diagnosis   

12/6

The National Institute for Health and Care research (NIHR) release ‘research call’

30/5

SMA UK proudly launched their new children’s book, Spinal Muscular Atrophy: Our SMArt World.

View all News >
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Treatments & Research

24/6

Hattie and James share their son Theo’s story about his SMA diagnosis   

20/6

SMA Care UK – one year on

14/5

Bringing SMA Care UK into focus at the annual conference of British Neurologists

View all Treatments & Research >

SMA in numbers

271

Families and adults living with SMA we’ve supported in 2024

51

Families and adults receiving wheelchairs through SMArt Moves Grants in 2024

97

Families and adults getting support through FleixGrants in 2024