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Welcome to SMA UK

Learn about us

Welcome to SMA UK

Since 1985, we have worked with the SMA Community to ensure that everyone affected by SMA has access to the best care, support and treatments and that research continues to bring much needed breakthroughs.

Our Community Support Team can provide both practical and emotional support.

Contact our Community Support Team here!

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Find out more about the work we do

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Our new four year strategy

Our four year strategy aims to build on our strong foundations, experiences and expertise to ensure we deliver the best outcomes for the SMA Community.

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SMA UK’s 40th Anniversary year!

Since the charity’s founding, SMA UK has played a vital role in supporting families and individuals as well as funding life changing research and campaigning on all issues facing the Community. Join us in celebrating these important milestones in 2025!

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SMA Care UK

SMA Care UK is a 3 -year project established by clinicians and patient groups to update and implement UK Standards of Care for people of all ages living with SMA.

Rareminds

Counselling service

SMA UK is working in partnership with Rareminds to offer a free, confidential counselling service for those affected by SMA aged 18+.

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SMArt Moves Grant

Our SMArt Moves Grant is open for applications. This grant can assist the SMA Community in purchasing mobility equipment and wheelchairs.

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FlexiGrants

SMA UK’s FlexiGrants are two grant schemes that help fund travel to hospital appointments and small pieces of equipment

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Fundraising

7/8

Riding a Mile for every Child : Ride Ireland

31/5

Southern Conference League to hold Spinal Muscular Atrophy round this Saturday!

17/1

Two powered wheelchair users will race up Snowdon to raise £100k… #KnowNoBounds

View all Fundraising >
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News

7/2

National Feeding Tube Awareness Week: Supporting Nutrition and Wellbeing for the SMA Community

21/1

From Molly to Noora: How a Kind Donation Transformed a Life

17/12

Fitness at Home – our new online program!

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Treatments & Research

5/9

SMA UK lead on collating and submitting comments on the MTA EAG report in collaboration with Treat SMA and MDUK.

30/4

SMA UK at the International Scientific Congress on SMA 2024

4/4

Roche Provides Community Update on Risdiplam Data, including Tablet Formulation

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SMA in numbers

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Families and adults living with SMA we’ve supported in 2024

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Families and adults receiving wheelchairs through SMArt Moves Grants in 2024

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Families and adults getting support through FleixGrants in 2024