Welcome to SMA UK
Were here for anyone affected by SMA
Since 1985, we have worked with the SMA Community to ensure that everyone affected by SMA has access to the best care, support and treatments and that research continues to bring much needed breakthroughs.
Our Community Support Team can provide both practical and emotional support.
Contact our Community Support Team >
Find out more about the work we do
Fundraising
Treatments & Research
SMA in numbers
1985
Founded as the Jennifer Trust
262
Families and adults living with SMA we’ve supported over the last 12 months
1,256
Downloads of our Living with SMA podcast in the last 12 months
Support our work
£5
per month
Could help fund a phone call with a member of our Outreach Team for a family who have just received a diagnosis of SMA
£10
per month
Could make a valuable contribution to funding our Health Information Officer who ensures that our information on treatments and clinical trials is up to date
£15
per month
Could help us to put on a event where the SMA Community can connect and share experiences