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Community Voices

Community Voices

You can read, watch and listen to a whole range of experiences and thoughts from members of the SMA Community. From making decisions about schools, to thinking about University, to sports and holidays and becoming a parent…..If you would like to talk or write about your experiences contact community.connections@smauk.org.uk

Luis Canto E Castro

Adult voices

Family of four with two boys riding bikes, one boy has SMA Type 3 and is riding an adapted trike

Children and family voices

Image shows two teenagers who are twins and who have SMA.

Teenage and young adult voices

If you would like to write for these pages or take part in a podcast or video, we would love to hear from you. Just so you know:

  • We make sure that everything we publish has accurate and current information about SMA.
  • We don’t discuss controversial treatments or research.
  • We don’t publish any negative statements about any individuals or organisations.
  • We don’t mention the names of anyone who has not agreed to be included in the piece.
  • When we publish something new, we let the SMA Community know. We do this via social media and our monthly E-newsletter

Get in touch at: 01789 267520 or email community.connections@smauk.org.uk

Bereaved family and friends memories

Purple flowers

Thank you to the bereaved families and friends who have chosen to share their memories of their loved one’s life with SMA with the SMA Community.

Read here>

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