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Welcome to SMA UK

Learn about us

Welcome to SMA UK

We are here for anyone affected by SMA

Since 1985, we have worked with the SMA Community to ensure that everyone affected by SMA has access to the best care, support and treatments and that research continues to bring much needed breakthroughs.

Find out more about the work we do and how best we can support you.

Click the images below to find out more! 

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Our new four year strategy

Our four year strategy aims to build on our strong foundations, experiences and expertise to ensure we deliver the best outcomes for the SMA Community.

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SMArt Moves Grant

We are delighted to reopen our SMArt Moves Grant for applications. This grant can assist the SMA Community in purchasing mobility equipment and wheelchairs.

MTA appraisal for nusinersen and spinraza

Your input is vital

Both treatments have been funded via time limited Managed Access Agreements (MAA) which end this year. Find out how SMA UK are involved, what this means for the SMA Community and how your views can be heard.

flexi grants

FlexiGrants

SMA UK’s FlexiGrants are two grant schemes that help fund travel to hospital appointments and small pieces of equipment

NEW WEBINR (A4 (Landscape))

Treatment update

Update from Consultant Paediatric Neurologists Dr Min Ong and Dr Imelda Hughes on the Zolgensma programme in the UK

RESONATE 2024

Resonate under 18’s

We are delighted to be hosting “Resonate” for under 18’s at the Calvert Trust. Lakes and are looking forward to welcoming you for the weekend.

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Fundraising

31/5

Southern Conference League to hold Spinal Muscular Atrophy round this Saturday!

17/1

Two powered wheelchair users will race up Snowdon to raise £100k… #KnowNoBounds

10/10

Family smash target, climbing the Three Peaks in under 24 hours!

View all Fundraising >
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News

18/7

Help Us Name Our SMA Aware-Bear!

25/6

Exploring Freedom: Bobby’s Journey with SMArt Moves Grants

30/4

SMA UK at the International Scientific Congress on SMA 2024

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Treatments & Research

30/4

SMA UK at the International Scientific Congress on SMA 2024

4/4

Roche Provides Community Update on Risdiplam Data, including Tablet Formulation

23/2

Major concerns over the future of adult neuromuscular care in Northern Ireland

View all Treatments & Research >

SMA in numbers

1985

Founded as the Jennifer Trust

262

Families and adults living with SMA we’ve supported over the last 12 months

1,256

Downloads of our Living with SMA podcast in the last 12 months