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MTA appraisal for nusinersen and spinraza

Your input is vital

Both treatments have been funded via time limited Managed Access Agreements (MAA) which come to an end this year. Find out about how SMA UK are invovled, what this means for the SMA Community and how you can have your views heard.

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SMArt Moves Grant

We are delighted to reopen our SMArt Moves Grant for applications. This grant can assist the SMA Community in purchasing mobility equipment and wheelchairs.

NEW WEBINR (A4 (Landscape))

Treatment update

Update from Consultant Paediatric Neurologists Dr Min Ong and Dr Imelda Hughes on the Zolgensma programme in the UK

Parallel Windsor

Parallel Windsor!

Join the SMA UK Team for the Parallel Windsor! Free places avaiable in this fantastic inclusive challenge event!

RESONATE 2024

Resonate under 18’s

We are delighted to be hosting “Resonate” for under 18’s at the Calvert Trust. Lakes and are looking forward to welcoming you for the weekend.

Event Picnic in the park

Picnic in the Parks!

Great news! Based on your feedback from last year, we’ve expanded our Picnic Events across the UK! Book your place now.

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Fundraising

17/1

Two powered wheelchair users will race up Snowdon to raise £100k… #KnowNoBounds

10/10

Family smash target, climbing the Three Peaks in under 24 hours!

27/9

Zoe Henderson designs another fantastic Christmas Card for SMA UK!

View all Fundraising >
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News

30/4

SMA UK at the International Scientific Congress on SMA 2024

24/4

Empowering Smiles: Lyla’s Journey with SMArt Moves 1.2 Grant

12/4

New Study Confirms Clinical Effectiveness of Newborn Screening for SMA, and an Update on the SMA / ISE Partnership Board

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Treatments & Research

30/4

SMA UK at the International Scientific Congress on SMA 2024

4/4

Roche Provides Community Update on Risdiplam Data, including Tablet Formulation

23/2

Major concerns over the future of adult neuromuscular care in Northern Ireland

View all Treatments & Research >

SMA in numbers

1985

Founded as the Jennifer Trust

262

Families and adults living with SMA we’ve supported over the last 12 months

1,256

Downloads of our Living with SMA podcast in the last 12 months