Welcome to SMA UK
We’re here for anyone affected by SMA
Since 1985, we have worked with the SMA Community to ensure that everyone affected by SMA has access to the best care, support and treatments and that research continues to bring much needed breakthroughs.
Find out more about the work we do and how best we can support you.
Spinal management data collection
SMA UK have launched a community survey to discover the differences in spinal management across the country and to collect perspectives on the effectiveness of different methods. We need data from across the whole of the UK to make sure we are representing a true picture.
Find out more and take part >
Living with SMA UK Podcast
SMA UK invites different hosts from across the SMA Community together to discuss different topics. This is great place to find useful tips, recommendations, and hear personal stories.
Living with SMA Podcast >
Fundraising
News
Treatments & Research
SMA in numbers
1985
Founded as the Jennifer Trust
269
Families and adults we’ve supported over the last 12 months
1,208
Downloads of our Living with SMA podcast in the last 12 months
Support our work
£5
per month
Could help fund a phone call with a member of our Outreach Team for a family who have just received a diagnosis of SMA
£10
per month
Could make a valuable contribution to funding our Health Information Officer who ensures that our information on treatments and clinical trials is up to date
£15
per month
Could help us to put on a event where the SMA Community can connect and share experiences