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Our new four year strategy

Our four year strategy aims to build on our strong foundations, experiences and expertise to ensure we deliver the best outcomes for the SMA Community.

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SMArt Moves Grant

We are delighted to reopen our SMArt Moves Grant for applications. This grant can assist the SMA Community in purchasing mobility equipment and wheelchairs.

MTA appraisal for nusinersen and spinraza

Your input is vital

Both treatments have been funded via time limited Managed Access Agreements (MAA) which end this year. Find out how SMA UK are involved, what this means for the SMA Community and how your views can be heard.

flexi grants


SMA UK’s FlexiGrants are two grant schemes that help fund travel to hospital appointments and small pieces of equipment

NEW WEBINR (A4 (Landscape))

Treatment update

Update from Consultant Paediatric Neurologists Dr Min Ong and Dr Imelda Hughes on the Zolgensma programme in the UK


Resonate under 18’s

We are delighted to be hosting “Resonate” for under 18’s at the Calvert Trust. Lakes and are looking forward to welcoming you for the weekend.

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Southern Conference League to hold Spinal Muscular Atrophy round this Saturday!


Two powered wheelchair users will race up Snowdon to raise £100k… #KnowNoBounds


Family smash target, climbing the Three Peaks in under 24 hours!

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Help Us Name Our SMA Aware-Bear!


Exploring Freedom: Bobby’s Journey with SMArt Moves Grants


SMA UK at the International Scientific Congress on SMA 2024

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Treatments & Research


SMA UK at the International Scientific Congress on SMA 2024


Roche Provides Community Update on Risdiplam Data, including Tablet Formulation


Major concerns over the future of adult neuromuscular care in Northern Ireland

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SMA in numbers


Founded as the Jennifer Trust


Families and adults living with SMA we’ve supported over the last 12 months


Downloads of our Living with SMA podcast in the last 12 months