Skip to content

Click the images below to find out more! 

MTA appraisal for nusinersen and spinraza

Your input is vital

Both treatments have been funded via time limited Managed Access Agreements (MAA) which come to an end this year. Find out about how SMA UK are invovled, what this means for the SMA Community and how you can have your views heard.

MicrosoftTeams-image (102)

SMArt Moves Grant

We are delighted to reopen our SMArt Moves Grant for applications. This grant can assist the SMA Community in purchasing mobility equipment and wheelchairs.

NEW WEBINR (A4 (Landscape))

Treatment update

Update from Consultant Paediatric Neurologists Dr Min Ong and Dr Imelda Hughes on the Zolgensma programme in the UK

Parallel Windsor

Parallel Windsor!

Join the SMA UK Team for the Parallel Windsor! Free places avaiable in this fantastic inclusive challenge event!


Resonate under 18’s

We are delighted to be hosting “Resonate” for under 18’s at the Calvert Trust. Lakes and are looking forward to welcoming you for the weekend.

Event Picnic in the park

Picnic in the Parks!

Great news! Based on your feedback from last year, we’ve expanded our Picnic Events across the UK! Book your place now.

Hand and heart icon



Two powered wheelchair users will race up Snowdon to raise £100k… #KnowNoBounds


Family smash target, climbing the Three Peaks in under 24 hours!


Zoe Henderson designs another fantastic Christmas Card for SMA UK!

View all Fundraising >
Calendar icon



SMA UK at the International Scientific Congress on SMA 2024


Empowering Smiles: Lyla’s Journey with SMArt Moves 1.2 Grant


New Study Confirms Clinical Effectiveness of Newborn Screening for SMA, and an Update on the SMA / ISE Partnership Board

View all News >
Microscope icon

Treatments & Research


SMA UK at the International Scientific Congress on SMA 2024


Roche Provides Community Update on Risdiplam Data, including Tablet Formulation


Major concerns over the future of adult neuromuscular care in Northern Ireland

View all Treatments & Research >

SMA in numbers


Founded as the Jennifer Trust


Families and adults living with SMA we’ve supported over the last 12 months


Downloads of our Living with SMA podcast in the last 12 months