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For SMA Awareness month 2024, we invited you to help raise awareness of SMA by sharing your photos of our new SMA Aware Bear, Smarty!

Many of you purchased your very own bear, and by doing so, not only did you get a companion for your summer adventures, but you also supported our cause and helped spread awareness wherever you went. We asked you to take him with you on all your summer activities. Whether you went on holiday, visited the park, or just spent time at home, our bear was excited to join you! From China and Rome to SMA UK’s resonate weekend, he’s been spreading awareness across the globe with your help! SMA Awareness month may be coming to a close, but Smarty’s journey is far from over!

SMA Awareness Month was a crucial time for us to educate others about Spinal Muscular Atrophy and advocate for those affected by it. By taking our bear on your adventures and sharing your photos, you helped shine a spotlight on SMA, and we invite you to do this far beyond SMA Awareness month! So if you haven’t already, head over to our website shop and grab your very own Smarty Bear and get snapping some pics!

SMA Awareness month 2023!

August is SMA Awareness month, and for 2023 we worked alongside SMA Europe to put SMA in the spotlight!

We celebrated what makes you, the SMA Community, unique as individuals. Our goal was to uplift your voices, sharing your experiences, needs and wishes for the future, as well as raising awareness to people outside the SMA Community, and raising funds to help us continue our work.

We’d like to say a huge thank you to everyone who bought pin badges and donated to our SMA Awareness Month Just Giving Page but also to everyone who shared their story with us to help raise awareness of SMA, and to everyone who got involved in our #IAmUnique montage video!

Thank you for all your support!