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Treatment & Care Webinars with Experts
Treatment & Care Webinars with Experts
Update on Treatments for Children who have 5q SMA
Leading health experts discuss the latest information about disease-modifying treatments and who may have access.
Update on Treatments for Adults who have 5q SMA
Leading clinical experts discuss the latest information about disease-modifying treatments and who may have access.
Treatment during pregnancy of a baby diagnosed with SMA Type 1
Leading clinical experts from Great Ormond Street Hospital discuss this ground-breaking development.
Current Research: Future Treatments
Dr. James Sleigh, provides a clear and accessible deep-dive into the rapidly evolving world of SMA treatments.
Physiotherapy through Play
Physios Jennie and Lindsey, and Cai and his mum, Hannah, suggest games and exercises for everyday life.
Exercise for Adults
Physios Robert, Katie & Anna explore the importance of physio and ways that it can be easily incorporated into daily routines.
Diet, nutrition & SMA
Sanah, an adult living with SMA, has a wide ranging insightful discussion with dietetic experts Graeme and Isla from Great Ormond Street.
Strategies to gain & lose weight
Part 1 of Diet, Nutrition & SMA: Isla Foote Specialist Paediatric Dietitian at Great Ormond Street Hospital (GOSH), shares her expert advice.
Specialist diets – how safe & healthy are they?
Part 2 of Diet, Nutrition & SMA Graeme delves into the evidence for the different types of specialist diets that are often recommended for SMA.
Exercise & SMA – getting it right for you
Maxwell, who has SMA, and Robert discuss what exercises work well for him and what physios think about when recommending an exercise plan.
The development of cognition & communication skills in SMA Type 1
The research, developmental signs, recommended strategies and how local and specialist teams can help.
Diet webinar
Maxwell, who has SMA, discusses some of his personal experiences and talks with expert Graeme about diet and nutrition.
