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Recently diagnosed with SMA

Recently diagnosed with SMA

If you or a family member has been recently diagnosed with SMA, this often comes as a shock and can be very difficult for everyone involved.

At SMA UK, we work with lead clinicians from the UK and Europe using their expert knowledge to help us create informative guides and provide the most up to date information in various formats that will help navigate a recent diagnosis of SMA.

SMA UK’s Support & Outreach Team are here to support you and your family at this time so please do not hesitate to get in touch with them.

If you want to know more about the latest updates on treatments and research, please see here.

Sidney

Looking after your Child who has SMA Type 1

This guide talks about the practical side of caring for your child with SMA Type 1…

Image shows child who has SMA Type 2 reading a book

Looking after your Child who has SMA Type 2

This guide talks about the practical side of caring for your child with SMA Type 2…

Bobby Allen at school

Looking after your Child who has SMA Type 3

The practical side of caring for your child combining healthcare information with tips and suggestions…

Image shows an adult man who has SMA, standing with his partner outside his house.

Adult Onset SMA – Diagnosis and Care

This guide includes: getting a diagnosis; posture, movement and exercise; diet and breathing; fatigue and pain; support and resources.

Image shows a young child with SMA Type 2 in a highchair with a tray, playing with toys.

Toys & Activities for Babies and Young Children

Our booklet for practical tips and suggestions for safe and supportive play for different ages and stages…

Child with SMA Website card

Emergency Care for Children

This information sheet will assist clinical staff at A&E services in local hospitals with their assessment of the needs of a child with SMA.

Image shows stethoscope and clipboard.

Who’s Who of Professionals

Over time, you are likely to have contact with a number of different health, education and social care professionals…