Skip to content
WhatsApp Image 2023-10-18 at 4.30.04 PM

Our Community Support Team

We offer free emotional support, practical advice and guidance to anyone affected by SMA.

MicrosoftTeams-image (29)

Living With SMA

Find out about daily living with SMA, for children, teenagers and adults.

Image shows a young child with SMA Type 2 in a highchair with a tray, playing with toys.

Multisensory Toypacks

Suitable for infants up to 12 months of age, the toypacks have been designed to offer entertainment during the day, fun at bath time and comfort at bedtime.

woman reading

Resources for Parents and Teachers

We offer various resources.

Image shows a variety of different powered wheelchairs and scooters.

Equipment Exhibitions, Sport and Other Events

Find out more about the different events taking place across the UK from various disability charities and providers.

Image shows a bunch of snowdrops.

Bereaved by SMA

Developments in treatment has brought great hope to many, but sadly some forms of SMA can still be life-threatening.

Other ways to get involved and find support

Keep up to date about access to treatments, campaigns and surveys, people’s stories and podcasts, as well as any social and fundraising events, on:


Facebook: @SpinalMuscularAtrophyUK

Twitter: @SMA_UK_ 

Instagram: @sma_uk

YouTube: @SpinalMuscularAtrophyUK

We pick up on the main updates in our monthly E-News which a lot of people find really useful. We also have a twice-yearly magazine called ‘SMA Matters’. Sign up for mailings here.

Listen to / watch our videos and podcasts many of which are chats with people living in the SMA Community – or read what people have to say in our Community Voices.

If these inspire you and you would like to be part of a recording or write about your experiences, it would be great to hear from you:

This will connect you with others to share experiences, ask questions and find out about activities and events.

Find out more 

Where we can, we bring the SMA Community together to meet others, share experiences and learn more about SMA.

Find out about what events we’re planning and when, please see this page

We could not carry out our vital work were it not for the financial support from our amazing donors and fundraisers.

If you would like to take part in an event or have your own ideas for fundraising we’d love to hear from you!

Find out more here or contact