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We have an information pack – "Getting Ready for School" – that we hope will help families as they start to think about primary education options. There are two versions:

The other pages in Living With SMA around this may also be helpful.

Please also see our Smasheroo book below, and Talking to Children about SMA. You can also contact our Support Team if you have any questions.

We are currently looking to expand and adapt these resources and will update this page when we have more information.


Image shows a copy of our book Smasheroo - the front cover has a cartoon drawing of a little girl standing next to a little boy who is in a powerchair.Smasheroo: ‘A person or thing of superlative quality or importance etc. a ‘smash-hit’.

Written by Hania Myers, mother of a child who has SMA Type 3 with illustrations by Mary Hall, this uplifting story highlights that everyone is different and everyone is special in their own way.

Any family affected by SMA, living in the UK, can request a free copy of the book by phoning 01789 267 520 or emailing us on: