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We’re currently looking to expand and adapt these resources and will update this page when we have more information.

In the meantime, please see our Smasheroo book below, and Talking to Children about SMA may be a useful website section to look at. You can also contact our Support & Outreach Team if you have any questions.

We have an information pack – "Get Ready for Primary School: A Guide for Families" – that may be helpful for parents / carers whose child has SMA and are thinking about their child starting school in England. It may also be useful for parents / carers whose child has already started school and is moving to a new class or a new school. If you’d like to find out more about the pack, please email:


Image shows a copy of our book Smasheroo - the front cover has a cartoon drawing of a little girl standing next to a little boy who is in a powerchair.Smasheroo: ‘A person or thing of superlative quality or importance etc. a ‘smash-hit’.

Written by Hania Myers, mother of a child who has SMA Type 3 with illustrations by Mary Hall, this uplifting story highlights that everyone is different and everyone is special in their own way.

Any family affected by SMA, living in the UK, can request a free copy of the book by phoning 01789 267 520 or emailing us on: