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We hope that some of the resources and services we can offer you will be useful. If you have any questions, please don’t hesitate to pick up the phone (01789 267520) or email us:

If we can’t answer directly, we’ll try to signpost you to someone who can.

Image shows young girl who has SMA, sitting in her wheelchair.

Information about SMA

Our information sheets and guides are particularly helpful if you are new to SMA. They cover a range of information, starting from ‘What Is 5q SMA?’ to guides for those who have had a recent diagnosis.

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Our Community Support Team

We support families with children and young people who have SMA, adults who have SMA, and those bereaved by SMA. This can be by email, phone, Zoom, text and, when we have capacity, home-visiting. We also support health professionals.

Image shows a lady, who has SMA, sitting in her wheelchair at the kitchen table.

Living With SMA

This area of our website aims to provide information and links on a whole range of topics. It is based on knowledge and advice from the SMA Community and SMA UK’s Support Services Team.

Image shows young girl, who has SMA, in a car seat in a car.

Car Seats and Equipment

We can share what has worked well for other families, and put questions out to the Community about what they use and how they manage. We can tell you about possible sources of funding which may include help from SMA UK.

Image shows a group of different people of different ages, some standing up, some sitting down, some in wheelchairs.

Connect with Others

We can link people up with others also affected by SMA. There are various ways this can happen, including at face to face events and through our community networks.

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Resources for Parents & Teachers

Finding the right words to explain this complex condition can be challenging. Our resources may help.

Image shows a young child with SMA Type 2 in a highchair with a tray, playing with toys.

Multisensory Toypacks

Available free of charge in the UK, these are suitable for infants up to 12 months of age. If a child is older, we may be able to help parents / carers access other suitable toys.

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Professional Training and Upskilling

We don’t provide this but have a number of resources and links to other organisations that you may find helpful.

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Why not keep in touch?

We can let you know about all the latest news via our monthly E-newsletter which covers what’s happening in the SMA Community.