Skip to content
Home
About
What we do
Annual report and impact
Meet the team
Partnerships, memberships and affiliations
Our Story
News & Updates
Contact
Shop
Make a donation
Home
About
What we do
Meet the team
Annual report and impact
Partnerships, memberships and affiliations
Our Story
Join our team
Support & Information
About SMA
Recently diagnosed with SMA
Support For You
Support and Resources for Professionals
SMArt Moves Grant: Empowering the SMA Community through mobility
Rarer Forms of SMA
Our Information Service
Treatments & Research
SMA Drug Pipeline
Access to Treatment
Nusinersen (Spinraza)
Risdiplam (Evrysdi)
Zolgensma (Onasemnogene Abeparvovec)
Drugs Currently Being Tested in Clinical Trials
Measures Used to Assess a Drug’s Effectiveness
Clinical, Innovative, & Basic Research
Treatment Approaches
Advocacy & Campaigning
Newborn Screening for SMA
Advocacy for Treatments
Other Advocacy Priorities
Consultations and Surveys
Campaigns with Partners
SMA Awareness Month
Living with SMA
Children (0-12 years) Living with SMA
Teenagers (13-17 years) Living With SMA
Adults Living with SMA
Family and Friends
Connect with the Community
Community Networks
Community Podcasts & Videos
Community Voices
Community Events
Other Ways to Connect
Support SMA UK
Donate
Our Newsletter
Fundraise for Us
Become a Corporate Supporter
In Memory
Fundraising Tips & Resources
How your donation makes a difference
Be Inspired by Others
News
Shop
Contact
Make a donation
Home
»
Meet the team
Meet the team
Meet the team
Our team
Giles Lomax
CEO
View profile
>
Outreach and Support Services
Michele Phillips
Jo Spicer
Claire Holdcroft
Becci Howell
Nicola Beer
Ally Allen
Information and Research
Liz Ryburn
Libby Roper
Vanessa Christie-Brown
Dr James Sleigh
Community Engagement and Advocacy
Portia Thorman
Luis Canto E Castro
Gary Edgecombe
Fundraising and Communications
Lucy de’Lemos
Rebecca Lewis
Stacey Shillingford
Yvonne Wright
Bec Noy
Operations
Lorna Penning
Martin Penning
Trustees
Mark Dearlove Chair of Trustees
Katharine Jackson Treasurer
Toby Mildon
Srin Madipalli
Dr. Anne-Marie Childs
Dr Ros Quinlivan
Lauren West
Dr. Alistair Emslie-Smith (MBE)
Yvette Edwards
Michael Collins
Ben Williams
Jennie Sheehan
Julian Fiorentini