Giles joined SMA UK in May 2023 to lead the charity into it’s next phase.
Over the last 12 years Giles has worked within several National Governing Bodies for Sport and a not-for-profit local authority, whilst also holding a number of board positions across several organisations. He was appointed as an independent director with Scottish Fencing in 2021, was member of the Scottish Professional Development board for CIMSPA, (The Chartered Institute for the Management of Sport and Physical Activity), was a member of the UK Coaching advisory panel, and also chairs the Judo Scotland Disciplinary panel.
“I feel extremely privileged to be leading the organisation as we continue to support people who are living with SMA. As CEO for SMA UK I will drive our mission forwards ensuring we work tirelessly to raise awareness of SMA, be a leading advocate for individuals and families and ensuring timely access to diagnosis, effective treatment and best management for all affected by SMA. I will make sure we listen to and support our community in making informed choices and will bring together skills, knowledge and resources in the UK and beyond, in our quest to optimise the future lives of all affected by SMA.
I bring a deep understanding of the physical and emotional impact on people who are living with SMA, being a father of twins who have SMA type 2 and I believe that those personal experiences will add significant value to the organisation.