About Us

Our Charity's Promises

Our Charity's Promises

We are registered with the Charity Commission and comply with the Charity Commission Code of Practice. We are committed to high standards of practice.

Annual Report & Financial Statements

Annual Report & Financial Statements

Download our latest annual report for the year ending 31st March 2018.

Membership, Trustees & Governance

Membership, Trustees & Governance

We are a membership organisation and a company limited by guarantee. We are governed by a Board of Trustees who are also our company directors.

Staff

Staff

Read more about our Support Services and Fundraising, Management and Administration teams that work here at SMA UK.

Our Story

Our Story

'The Jennifer Trust for Spinal Muscular Atrophy' was set up in 1985. In April 2014 it changed its name to 'Spinal Muscular Atrophy Support UK’. The SMA Trust was set up in 2003. In 2018, the two charities merged to form Spinal Muscular Atrophy UK.

Our Policies

Our Policies

These cover a range of topics.

Partnerships & Affiliations

Partnerships & Affiliations

We are pleased to have strong links with many groups and organisations.

Our Leaflets

Our Leaflets

These include an overview of our services, how we support research and access to new treatments, and how you can help us.

How We Have Supported Research

How We Have Supported Research

When SMA Support UK and The SMA Trust merged in 2018, they brought a strong legacy with them.