About Us

Our Research Strategy

Our Research Strategy

Find out more about our research strategy, including projects we support and other SMA organisations we collaborate with.

Our Charity's Promises

Our Charity's Promises

We are registered with the Charity Commission and comply with the Charity Commission Code of Practice. We are committed to high standards of practice.

Annual Report & Financial Statements

Annual Report & Financial Statements

Click here to read our latest Annual Report & Financial Statements for the 2020 / 21 year, as presented at our AGM on 8th July 2021.

Trustees & Governance

Trustees & Governance

Meet our Board of Trustees and read more about the governance of the Charity.

Our Team

Our Team

Read more about our SMA UK Teams: Support Services, Community Connections, Research Information , Fundraising, Management & Administration.

Partnerships, Memberships & Affiliations

Partnerships, Memberships & Affiliations

We are pleased to have strong links with many groups and organisations.

Our Story

Our Story

'The Jennifer Trust for Spinal Muscular Atrophy' was set up in 1985. In April 2014 it changed its name to 'Spinal Muscular Atrophy Support UK’. The SMA Trust was set up in 2003. In 2018, the two charities merged to form Spinal Muscular Atrophy UK.

Our Policies

Our Policies

These cover a range of topics.

Our Leaflets

Our Leaflets

These include an overview of our services, how we support research and access to new treatments, and how you can help us.