Our Strategy
Our Strategy
In May 2023, Giles Lomax joined the charity as CEO to lead the charity into its next phase. In 2024 we lauched SMA UK’s new four-year strategy, "Building a future together".
"‘Our new strategy, ‘Building a future together’ aims to build on our strong foundations, experiences and expertise to ensure we deliver the best outcomes for the SMA Community and make sure that supporting anyone affected by SMA is at the core of everything we do." Giles Lomax, CEO
Read our four year strategy document in more detail here
Supporting
Supporting anyone affected by SMA is at the core of everything we do. SMA UK is dedicated to supporting families and individuals throughout their SMA journey.
Informing
We will provide reliable, engaging information so the SMA community can make informed choices.
Advocating
Will we advocate for the best possible future for anyone living with or affected by SMA across the UK.
Funding
We will secure a wide array of funding sources, each with significant impact, empowering us to create the most meaningful change for individuals affected by SMA.
Our Guiding Principles
Spinal Muscular Atrophy (SMA) is a complex and rare neuromuscular condition that affects each individual and their family differently. We will always be respectful of each person’s needs and choices. All face the challenge of obtaining the right support, care and opportunities to enable them to live long and fulfilling lives; some face the distress of early bereavement.