Now that we have more children benefiting from drug treatments and reaching pre-school and school age, we’re hearing that many parents are facing a range of issues. These include finding a local nursery or school, which will welcome their child, make any necessary adaptations and include them in all activities.

Working with experienced parents and professionals, we’re aiming to find the best ways to overcome the many issues to overcome such as inclusion, accessibility, 1:1 support and ECHP plans.

What’s happening now?