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What We Need From You:

1. Please provide a summary of what you are asking that you would like us to post including:

  • Who you are
  • Who you are working for
  • Why you are undertaking the study

2. Has it been through any ethical committee or other checks?

3. Who you are wanting to hear from:

  • Ages?
  • People who have SMA?
  • Parents, guardians, unpaid carers?

4. Any specific requests e.g. about clinical diagnosis of SMA Type?

5. Who anyone interested should contact for more information:

  • Name
  • Email
  • Phone

6. Closing date

7. If appropriate, the direct link to your survey

8. Please provide a short advertisement – see this page for current examples

9. Let us know if you would like us to advertise your request via social media and E-news which goes out on the last Friday of every month – we need at least a week’s notice for it to be included.

Please send your request to:

We will do our best to help but reserve the right to decline your request.