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We are grateful for all the media coverage that highlights the urgent need for newborn screening for SMA to implemented in the UK.

Victoria Macdonald, Channel 4’s Health and Social Care Editor talks to Giles Lomax, CEO of SMA UK, highlighting the need for newborn screening in the UK on Channel 4 News (24th June 2025). Our thanks go out to Dr Giovanni Baranello, Professor of Paediatric Neromuscular Disorders at Great Ormond Street Hospital and Dharmesha and Kuba Stezaly for sharing their son Seb’s story in this powerful piece.

 

BBC Radio London, Newborn Screening for SMA

22nd July 2025

Sky News on Newborn Screening for SMA

20th July 2025

BBC One West Midlands on Newborn Screening for SMA

17th  July 2025

ITV News Central on Newborn Screening for SMA

17th July 2025

ITV Good Morning Britain on Newborn Screening for SMA

17th July 2025