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The survey being run by Warwick University to gather the views of people and families affected by SMA will be closing soon.

The survey is open to people living with SMA (of any Type), and family members of people who have / had SMA (e.g., parents, grandparents, siblings, aunts & uncles, cousins etc) so please share this link widely among your family members. The survey takes around 15 minutes to complete. This is an opportunity to contribute to the decision-making process of the UK National Screening Committee, as results will be summarised and presented to the UK NSC.

You can find out more and complete the survey here >

Or if you have any questions, please email: