Latest News: Support

Respond to PEEPs (Personal Emergency Evacuation Plans) Consultation

23 June 2021 / Posted in: Information, Support

The Government is running a consultation seeking views on new proposals to implement the Grenfell Tower Inquiry Phase 1 recommendations on 'PEEPs' in high-rise residential buildings. Claddag - a Leaseholder Disability Action Group - have put together some suggested responses to help if you'd like to respond to the consultation which closes on 19th July.

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Contact: Write to the JVCI about Vaccines for Clinically Vulnerable Children

17 June 2021 / Posted in: Information, Support

National charity Contact have prepared a template letter for parents / carers who want the Joint Committee on Vaccination and Immunisation (JCVI) to recommend offering a Covid-19 vaccine as soon as possible to children with underlying health conditions / who are clinically vulnerable.

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Contact Survey: Counting the Costs 2021

15 June 2021 / Posted in: Information, Support

Contact is running this new survey to find out how the pandemic has affected your family finances and how you're feeling about your future family finances. It takes about 25 minutes to complete and there is an opportunity at the end to win one of three £100 vouchers. The deadline to complete is Wednesday 7 July at 9am.

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140+ Organisations Call on Government to put Children at the Heart of the Nation's Recovery

09 June 2021 / Posted in: Information, Support

Despite the Prime Minister’s pledges on Building Back Better and Levelling Up, the resignation of Sir Kevan Collins has highlighted a disturbing truth: supporting babies, children and young people to recover from the impact of the pandemic is still not a priority for Government investment. That’s why we’re joining the National Children’s Bureau and 140+ organisations in a call to Government to put babies, children and young people at the heart of COVID-19 recovery.

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Online Event: Periods and Disability, Impairments & Conditions

20 May 2021 / Posted in: Information, Support

Organised by environmental non-profit organisation City to Sea, this online event is taking place on Friday 28th May (Menstrual Health Day). The panel will be discussing periods, menstrual education and period products, through the lens of disability, impairments and conditions.

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Living With SMA Podcast - Episode #4 Out Now!

20 May 2021 / Posted in: Information, Support

In this episode - 'Adult Onset SMA' - SMA UK Host Martyn Sibley chats with Peter, who shares his personal journey to a diagnosis of SMA Type 4 in adulthood. Talking about how this ‘Adult Onset’ form of the condition has changed his life, Peter describes some of the challenges he’s faced and overcome and how he’s adapted to living with SMA.

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Survey Exploring Access to the Standards of Care for People who have SMA in the UK

10 May 2021 / Posted in: Information, Support

The John Walton Muscular Dystrophy Research Centre in Newcastle invites one respondent for each child / adult who has SMA to take part in gathering this important information that will help guide future practice.

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Mental Health Awareness Week 2021

07 May 2021 / Posted in: Information, Support

This week (10th - 16th) is Mental Health Awareness Week and this year's theme is 'Nature'. Find out more about this, as well as how SMA UK can help with providing information and support.

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Sense Campaign - Left Out Of Life

22 April 2021 / Posted in: Information, Support

Sense have launched this campaign, which is about taking action to tackle loneliness among disabled people and making society more inclusive. The campaign is calling for more investment in services to tackle loneliness and offer mental health support for disabled people. Sign their pledge and play your part in making society more inclusive.

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BBC News Survey - How Covid-19 has Affected Deaf and Disabled People

21 April 2021 / Posted in: Information, Support

BBC News is carrying out a survey to understand how Covid-19 has affected deaf and disabled people. They are trying to reach as many people as possible to get the biggest, most detailed picture they can.

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