Advocacy Lead, Portia Thorman, attends The International Conference on Newborn Sequencing
Advocacy
Advocacy
SMA on the first list of conditions screened for in Genomics England‘s Generation Study
SMA Health Inequity Survey
Not long left to submit your applications to join the Adult Advocacy Working Group…
Planning for a UK-wide SMA newborn screening pilot to start later this year
Adelphi Values Interview Study – Physical Ability: What is important to you?
Research into the views of the SMA Community towards newborn screening for SMA in the UK
APPG for Muscular Dystrophy: Newborn Screening for Rare Conditions
Calling for Progress on Care Coordination in the UK
