Skip to content

Karol’s SMArt Moves Story

Advocacy
Information

New Study Confirms Clinical Effectiveness of Newborn Screening for SMA, and an Update on the SMA / ISE Partnership Board

Advocacy
Information
News
Image shows baby's feet and an adult's hand

Major concerns over the future of adult neuromuscular care in Northern Ireland

Information
Treatments & Research

Disability Action Plan 2024

Advocacy
Information
News

Final call for responses to survey: What do the SMA Community think about screening all newborn babies for 5q SMA?

Advocacy
Information
News
Surveys

Updated guidance on Risdiplam

Information
News
Treatments & Research

Roche Provides End of Year Community Update

Information
Treatments & Research
Image shows the Roche logo in white on a dark blue background.

Office Christmas Closure

Information
News

Republic of Ireland adds SMA to the newborn screening blood spot test!

Information
News
Treatments & Research

Progress update on UK NSC work to assess newborn screening for SMA

Advocacy
Information
News
Treatments & Research