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Say hello to Gary!

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APPG for Muscular Dystrophy: Newborn Screening for Rare Conditions

Advocacy
Information
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SMA UK Trustee Event – An evening with Sir Richard Dearlove OBE

Fundraising
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Calling for Progress on Care Coordination in the UK

Advocacy
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Novartis presents data on long-term treatment with Zolgensma

Information
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Treatments & Research

ROCHE Community Update – SUNFISH Trial

Information
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Treatments & Research

NHS England Provides Further Guidance around Definition of Non-Success of Zolgensma

Information
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Treatments & Research

Results Published from STRONG Trial of Zolgensma

Information
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Treatments & Research

Giles Lomax – CEO Announcement

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Giles Lomax