Community videos
Community videos
Many thanks to community members who discuss a wide range of topics.
Time codes in each YouTube video description, give you the option to go directly to the part of the discussion that‘s of most interest to you.
These videos were produced and funded by Roche and SMA Europe
Luis Story
Adele’s Story
Gary’s Story
Recorded January 2021
Josh Wintersgill, Martyn Sibley and Molly Carnan discuss Sex & Relationships:
Our thanks to Biogen for sponsoring our digital training in May 2021 to assist with producing this recording and providing useful guidance for our participants.
Webinar by SMA Europe
Recorded December 2020
Emma Vogelmann and Julian Fiorentini discuss all things tech related.
Our thanks to Biogen for sponsoring our digital training in May 2021 to assist with producing this recording and providing useful guidance for our participants.
Recorded November 2020
Josh Wintersgill and Jordanne Wozencroft answer your questions and share their experiences of growing up and living with SMA.
Our thanks to Biogen for sponsoring our digital training in May 2021 to assist with producing this recording and providing useful guidance for our participants.
Recorded November 2020
Becca Torricelli, Molly Carnan and Julian Fiorentini talk about disability and parenting, sharing their own stories.
Our thanks to Biogen for sponsoring our digital training in May 2021 to assist with producing this recording and providing useful guidance for our participants.
Recorded October 2020
Emma Vogelmann, Becca Torricelli and Jack Hassan give you an insight in to how they manage their budgets and offer some helpful advice on personal health budgets and personal budgets for social care.
Our thanks to Biogen for sponsoring our digital training in May 2021 to assist with producing this recording and providing useful guidance for our participants.
Recorded September 2020
Emma Vogelmann discuss moving to self-employment, graduate schemes, finding accommodation, working from home, the impact of COVID-19 and much more…
Our thanks to Biogen for sponsoring our digital training in May 2021 to assist with producing this recording and providing useful guidance for our participants.
Recorded October 2020
Josh Wintersgill, Emma Vogelmann and Becca Torricelli talk about Preparing for University. Some of the areas we cover in this episode include:
– How we picked the right university
– Accomodation and care
– The pros and cons of living at university vs commuting
– Disability Students Allowance
- General experience of being a disabled student