Meet Hattie, Esmé and Lily!

During SMA Awareness Month 2022, the families of Hattie, Esmé and Lily shared quotes and photos of each of them:

Hattie has SMA Type 2 and was diagnosed in April 2021 at 19
months old.She has had 7 doses of Spinraza and mum, Mollie, says she “is
doing absolutely amazing. Hattie is cheeky, sassy and extremely
determined. She makes us all incredibly proud.”

If you have Instagram, you can follow Hattie’s journey here:
@hattie_sma

Image shows a little girl who has SMA, sitting in her wheelchair and smiling at the camera. She has blonde hair and is wearing a pink dress.

Esmé is 6 years old and has SMA Type 2.

She was diagnosed inJune 2017 and is currently receiving Spinraza.

Mum, Stacie, describes Esmé as a “funny, bright little girl!”

Say hello to Lily who is 6 years old and has SMA Type 2!

She says: “Having SMA is just normal to me. I have a happy life and I do loads of exciting things and have many adventures! I love my wheelchair, she’s called Goldie. Before I had Goldie, I didn’t like playing with other children unless I had an adult
around. In Goldie, I am brave and happy and free!

I have many friends and I go to school and theatre class and to birthday
parties and friends’ houses with confidence because of my
wheelchair.”

Image shows a young girl who has SMA, sitting in her wheelchair. She is holding a slingshot made from twigs and an elastic band.