Survey aim: To better understand the unmet needs of patients with neuromuscular conditions and contribute towards the development of a Neuromuscular Complex Care Centre (NMCCC) in the northeast of England.
In 2014, the UK’s first Neuromuscular Complex Care Centre was launched at Queens Square, UCL London, with the aim to improve quality of care, provide better coordinated care, reduce the number of unplanned admissions, and ultimately reduce costs. Following the success of this unit, the John Walton Muscular Dystrophy Research Centre, Newcastle Hospitals NHS and Foundation Trust and Newcastle University are looking to establish a similar Neuromuscular Complex Care Centre in the North East. They are therefore running this survey to better understand the unmet needs of those affected by neuromuscular conditions.
Who can complete the survey:
- People who have SMA, or other neuromuscular conditions
- People of all ages
- Affected individuals, parents, guardians, unpaid carers
Deadline to share your views is 31st August 2023.
To find out more, please download the poster below or email: Grecia Alvarez