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Last checked: April 2025

Liam is fictional but not unlike children we know who have SMA Type 3. He is able to walk but gets tired and may need support. This is what Liam and his parents might tell a school about him and how his SMA affects his health.

I go to preschool 3 days a week – I love going.

I sometimes need a bit of extra support. But the teachers and helpers know all about me. They know how to make sure I can join in with everything and do as much as I can by myself.

My Mum and my big sister Maya who I live with.

My Dad who I see sometimes at the weekend.

My Granny, Grandad and Nana.

Playing with my friend Luke

Looking at books and listening to stories Swimming

Looking after our guinea pigs

Watching Strictly and dancing.

Building things with Lego

Drawing pictures of my family

Making people laugh

I know some letters and can read some words I can count a long way.

You can read more about this in SMA UK’s Information Sheets >, but that’s just general.

My SMA means that my legs can get tired. It can make running around and keeping up with games hard work.

Sometimes when I start getting tired, I fall over because my legs aren’t very strong. Then I need help to get up. If I’m sitting on a chair, one with arms is best for me. At preschool I have a frame around the toilet to help me stand up.

I take a medicine at home every day to treat my SMA. I have to do physiotherapy exercises at home every day as well.

I don’t mind other children knowing about my SMA. My mum and dad can tell you more about what we usually say about it.

I don’t like dogs as one bit me once!

I want to join in with everything at school and do as much as I can by myself.

I’m really looking forward to starting school next year -joining in, learning and playing with everyone else and making new friends.