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Page last updated: 27th January 2023

The Standards of Care were published in the two following articles in November 2017. They’re also summarised in the family-friendly guide (please scroll down and see links below):

Since publication, new drug treatments have brought rapid change and many unknowns. Clinicians nationally and internationally are constantly reviewing and discussing best care and management practice. This does mean that some recommendations are now changing and work to review these guidelines has started.

You can read about plans to explore this via the SMA Care UK Project.

In view of these changes, care and management of a person’s condition will be very individualised based on assessment by and discussion with their clinical team. The SoC are though still a key reference for clinical teams when discussing care with families and adults.

For the complete UK Guide pdf version, please click here.

Some translations are available – see the bottom of this page.

For the chapter-by-chapter UK Guide online :

SMA UK was pleased to have been a very active member of the international group that worked on the project to produce this family guide. We remain grateful to all the people who generously allowed their photos to enrich the UK version.

These articles and this guide replaced the original Standards of Care 2007 which were published as a family-friendly version in 2008.