Skip to content

Ugene is the SMA UK Mascot, who made his first appearance at the London Marathon in April 2023.

His aim is to travel the UK raising awareness of SMA and helping our amazing fundraisers to raise even more when they are taking part in events!

He has been designed to represent the faulty SMN1 gene, which causes SMA.

If you would like to find out more about Ugene or you would be interested in bringing him to life as part of your next challenge for SMA UK then please contact us on 01789 267520 or at