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Page last updated: 17th January 2024

Access is for the treatment of 5q SMA for those with a clinical diagnosis of SMA Type 1, Type 2 or Type 3, or with one to four SMN2 copies.

I’m keen for access, what do I do now?

Talk to your neuromuscular specialist, or if you don’t have one, to your GP and ask for a referral to a Centre providing the treatment. Centres now offering treatment for both children and adults are in:

  • Aberdeen
  • Dundee
  • Edinburgh
  • Glasgow
  • Inverness

Our summary guides provide information that may be helpful, wherever you live:

Drug Treatments for Children in England who have SMA >

Drug Treatments for Adults in England who have SMA >

How long would it take to get to my supply started at home?

Different hospitals have different processes and timelines which can affect how long it takes for your risdiplam supply to get through the hospital system. Times may vary for how long it takes for your prescription to be finalised. They may also vary for how long it takes for your hospital paperwork to then be referred to and reach the Homecare Company, if one is being used. Once the Homecare Company has received your prescription and registration form from the hospital, the Company will contact you to welcome you to the service. They will answer any questions you may have and agree delivery details with you.

Risdiplam: What it is, How it works, and Other FAQs >