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Page last updated: 17th March 2023

We have been advised that Wales and Northern Ireland will follow NICE guidance for England and will follow the guidelines of the Managed Access Agreement.

  • Children and adults living in NI may receive treatment in Belfast.
  • Children living in Wales may receive risdiplam treatment from Bristol.
  • Adults living in Wales may receive treatment from Swansea or Cardiff.

We understand the MAA is followed in terms of eligibility and data collection. The clinical panel is also happy to consider any cases submitted by clinicians in Wales or Northern Ireland.

Our summary guides provide information that may be helpful, wherever you live:

Drug Treatments for Children in England who have SMA >

Drug Treatments for Adults in England who have SMA >

How long would it take to get to my supply started at home?

Different hospitals have different processes and timelines which can affect how long it takes for your risdiplam supply to get through the hospital system. Times may vary for how long it takes for your prescription to be finalised. They may also vary for how long it takes for your hospital paperwork to then be referred to and reach the Homecare Company, if one is being used. Once the Homecare Company has received your prescription and registration form from the hospital, the Company will contact you to welcome you to the service. They will answer any questions you may have and agree delivery details with you.