Skip to content

Home
About
News & Updates
Contact
Shop

Make a donation

Home
About
Support & Information
Treatments & Research
Advocacy & Campaigning
SMA Care UK
- For Patients and Families
- For Healthcare Professionals
Living with SMA
Connect with the Community
Support SMA UK
News
Shop
Contact

Make a donation

Information Order Form (UK only)

Information Order Form (UK only)

Information Order Form (UK only)

Please fill in the information below to request hard copies of our information sheets and guides.

Name(Required)

Mailing Address(Required)

Postcode(Required)

Email address(Required)

Confirm email address(Required)

Phone Number

Relationship to the person who has SMA:

If a health professional, please state job title:

Information Publications

Spinal Muscular Atrophy – A Brief Summary

About SMA (trifold leaflet)

About SMA UK (trifold leaflet)

Information and Support (trifold leaflet)

What is 5q Spinal Muscular Atrophy?

Symptoms & Effects of 5q SMA Type 1

Symptoms & Effects of 5q SMA Type 2

Symptoms & Effects of 5q SMA Type 3

Symptoms & Effects of 5q SMA Type 4

The Genetics of 5q Spinal Muscular Atrophy

Family Planning For Couples Affected By 5q SMA

Drug Treatments for children in England who have 5q SMA – Type 1,2 or 3

Drug Treatments for adults in England who have SMA

Drug Treatments for Children in England who have SMA

Hearing Your Baby’s Diagnosis of Spinal Muscular Atrophy (SMA)

Hearing Your Child’s Diagnosis of Spinal Muscular Atrophy (SMA)

SMA Type 1 – Looking After Your Child who has had a Recent Diagnosis

SMA Type 2 – Looking After Your Child who has had a Recent Diagnosis

Toys, Play & Activities for Babies and Young Children who have SMA

SMA Type 3 – Looking After Your Child who has had a Recent Diagnosis

Getting Ready for Primary School in England – A Guide for Families (pack)

Essential Information for Emergency Services when Assessing and Caring for a Child who has SMA

Adult Onset SMA – Diagnosis and Care

Who’s Who of Professionals

The Inheritance Patterns of Some Rarer Forms of SMA

Rarer Forms – Distal Spinal Muscular Atrophy type V (DSMA-V)

Rarer Forms – Spinal and Bulbar Muscular Atrophy (SBMA) – Kennedy’s Disease

Rarer Forms – SMA with Lower Extremity Predominance (SMA-LED)

Rarer Forms – SMA with Progressive Myoclonic Epilepsy (SMA-PME)

Rarer Forms – Spinal Muscular Atrophy with Respiratory Distress 1 (SMARD1)

Rarer Forms – X-Linked Spinal Muscular Atrophy

Other requests:

Consent(Required)

I consent to SMA UK safely storing and using this contact information so that you can respond to my request. SMA UK will not share my information with any third party unless I give permission or they are required to do so by law. I know I can read more about this in the Privacy Policy*

CAPTCHA

Email

This field is for validation purposes and should be left unchanged.

Contact

01789 267520
office@smauk.org.uk

Monday - Thursday: 8.30am - 4pm
Friday: 8.30am - 1pm

(Closed on public holidays)

Quick Links

Home
About
Support & Information
Treatments & Research
Advocacy & Campaigning
SMA Care UK
- For Patients and Families
- For Healthcare Professionals
Living with SMA
Connect with the Community
Support SMA UK
News
Shop
Contact

Quick Links

Home
About
News & Updates
Contact
Shop

Address

Unit 9
Shottery Brook Office Park
Timothy’s Bridge Road
Stratford-upon-Avon
Warwickshire
CV37 9NR

Follow us

Registered Charity Number: 1106815

Privacy
Terms
Our policies

Site by Granite 5