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Page last updated: April 2025

 

Recorded March 2025

 

Louise talks about being a Mum who has SMA:


Recorded February 2023

 

Julian and Molly chat to Becca about having SMA and becoming a parent:


 Recorded November 2020

 

Image shows an adult man who has SMA sitting in his wheelchair, holding his baby son. They're looking at each other and smiling.

Image shows a mother who has SMA sitting in her wheelchair, with her baby boy sitting on her lap.

 

Josh and Molly also each share their experiences of having SMA and becoming a parent in our Community Voices.

 

 

Our What’s App Groups and Online groups and forums can provide peer support, tips and ideas for parents who have SMA.

Young Minds – offer online information and resources for parents. They also have a phone helpline for parents worried about a child or young person under 25 years.

Relate – support people to make the most of family relationships. They offer help for people of all ages, backgrounds, sexual orientations and gender identities to strengthen their relationships. They also offer other information and offer family counselling.