Young Adults' Network (ages (18-25)

From work placements to learning to drive, to thinking about Uni and moving away from home, these young people are willing to talk about their experiences with anyone embarking on these journeys and with parents who have questions or are also looking for tips and ideas.

If you’re a young person thinking about what to do next, or you’d like to hear how others have managed, please do get in touch. If you’re under 18, you’ll just need your parent / guardian to agree to your involvement.

If you’re a young adult (18-25) looking to get involved and are happy to share your experiences with others, then we’d really like to hear from you. 

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"I feel so much more reassured about Uni, driving and my future in general. They all make me feel very inspired! I would urge anyone to try to have contacts with other people with SMA. Seeing as it isn’t that common and you don’t regularly have contact with anyone else with the disability, it can at times feel isolating. However, with these contacts I feel like I have ‘mentors’ who truly understand and want to help me, which is liberating on a physical and psychological level."