Young Adults' Network (ages (18-25)

From work placements to learning to drive, to thinking about Uni and moving away from home, these young people are willing to talk about their experiences with anyone embarking on these journeys and with parents who have questions or are also looking for tips and ideas. Network members are also very much involved with Community Connections and ‘Speak up for SMA’.

If you’re a young person thinking about what to do next, or you’d like to hear how others have managed, please do get in touch. If you’re under 18, you will just need your parent / guardian to agree to you being in touch with young adults on the Network.

"I feel so much more reassured about Uni, driving and my future in general. They all make me feel very inspired! I would urge anyone to try to have contacts with other people with SMA. Seeing as it isn’t that common and you don’t regularly have contact with anyone else with the disability, it can at times feel isolating. However, with these contacts I feel like I have ‘mentors’ who truly understand and want to help me, which is liberating on a physical and psychological level."

Get in touch for tips and ideas

Aged 18 – 25? It might be a space you’d like to join to share your experiences and also meet up with others: Join Up