Please read our policies that may be of interest to you.

Concerns and Complaints

If you have reason to complain.


Confidentiality and Data Protection

We have strict standards and high expectations.


Disagreements Over Management and Treatment

If parents / carers of a child with SMA or an adult with SMA disagrees with their medical team re: management and treatment options.

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Equality, Diversity and Inclusion Policy

SMA UK is committed to developing, maintaining and supporting a culture of equality, diversity and inclusion in its workforce and in the delivery of its services.

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Information Production Policy

Our aims and commitment to accuracy.


Our Volunteering & Network Guidelines

These are helpful to read if you're volunteering for SMA UK and / or perhaps having one-on-one contact sharing your tips and ideas with someone.

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Personal Funding Campaigns Policy

How we respond to these campaigns.

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Safeguarding Adults

Our commitment to zero tolerance of abuse and neglect. 

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Safeguarding Children

Everyone who comes into contact with children and families has a role to play.


Treatment of Animals Policy 

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