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Karol’s SMArt Moves Story

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New Study Confirms Clinical Effectiveness of Newborn Screening for SMA, and an Update on the SMA / ISE Partnership Board

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Major concerns over the future of adult neuromuscular care in Northern Ireland

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Treatments & Research

Disability Action Plan 2024

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Final call for responses to survey: What do the SMA Community think about screening all newborn babies for 5q SMA?

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Surveys

Updated guidance on Risdiplam

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Treatments & Research

Roche Provides End of Year Community Update

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Treatments & Research
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Office Christmas Closure

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Republic of Ireland adds SMA to the newborn screening blood spot test!

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Treatments & Research

Progress update on UK NSC work to assess newborn screening for SMA

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