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ISE to start screening for SMA in England from October 2026!

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Wes Streeting, Jesy Nelson & Giles Lomax in TV studio

Newborn screening for SMA: a short overview

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Reflecting on recent news shared by Jesy Nelson

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Treatments & Research

Landmark victory as Spinraza becomes routinely available on the NHS in Scotland

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Image shows a couple with a child in a whizzy bug holdig signs that say #ScreenTodayForSMA and SMA treatements: essential not exendable

Spinal Muscular Atrophy UK (SMA UK) and Newcastle University are pleased to officially announce a new partnership to advance care for people living with spinal muscular atrophy (SMA).

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National Feeding Tube Awareness Week: Supporting Nutrition and Wellbeing for the SMA Community

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From Molly to Noora: How a Kind Donation Transformed a Life

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Karol’s SMArt Moves Story

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New Study Confirms Clinical Effectiveness of Newborn Screening for SMA, and an Update on the SMA / ISE Partnership Board

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Image shows baby's feet and an adult's hand

Major concerns over the future of adult neuromuscular care in Northern Ireland

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