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Office Christmas Closure

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Republic of Ireland adds SMA to the newborn screening blood spot test!

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Treatments & Research

Progress update on UK NSC work to assess newborn screening for SMA

Advocacy
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Treatments & Research

SMArt Moves: Empowering the SMA Community through mobility.

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Advocacy Lead, Portia Thorman, attends The International Conference on Newborn Sequencing

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Eating, Diet and Nutrition in SMA

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Treatments & Research

Disabled Children’s Partnership – New Campaign: “This is Social Care”

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SMA Health Inequity Survey

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New Survey: Patient feedback around development of a Neuromuscular Complex Care Centre (NMCCC) in the North East

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Surveys

Not long left to submit your applications to join the Adult Advocacy Working Group…

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