Advocacy
Advocacy
New Study Confirms Clinical Effectiveness of Newborn Screening for SMA, and an Update on the SMA / ISE Partnership Board
Thames Valley Pilot Study extends beyond the Thames Valley and finds a new name, due to enthusiasm for newborn screening for SMA in other places
Disability Action Plan 2024
Final call for responses to survey: What do the SMA Community think about screening all newborn babies for 5q SMA?
Take Part: Share your experiences of SMA with healthcare decision-makers
New survey: What do the SMA Community think about screening all newborn babies for 5q SMA?
Progress update on UK NSC work to assess newborn screening for SMA
Advocacy Lead, Portia Thorman, attends The International Conference on Newborn Sequencing
SMA on the first list of conditions screened for in Genomics England‘s Generation Study
