Skip to content

Join the Conversation: Advocating for the Future of SMA Treatments

Advocacy

Mental Health Awareness Week 2024

Advocacy

Empowering Smiles: Lyla’s Journey with SMArt Moves 1.2 Grant

Advocacy
News

New Study Confirms Clinical Effectiveness of Newborn Screening for SMA, and an Update on the SMA / ISE Partnership Board

Advocacy
Information
News
Image shows baby's feet and an adult's hand

Thames Valley Pilot Study extends beyond the Thames Valley and finds a new name, due to enthusiasm for newborn screening for SMA in other places

Advocacy
News

Disability Action Plan 2024

Advocacy
Information
News

Final call for responses to survey: What do the SMA Community think about screening all newborn babies for 5q SMA?

Advocacy
Information
News
Surveys

Take Part: Share your experiences of SMA with healthcare decision-makers

Advocacy
News
Surveys

New survey: What do the SMA Community think about screening all newborn babies for 5q SMA?

News
Advocacy
Surveys

Progress update on UK NSC work to assess newborn screening for SMA

Advocacy
Information
News
Treatments & Research