Take Part: Survey on the Impact of SMA on the Lives of Those Living with the Condition and Their Caregivers
Advocacy
Advocacy
New survey: What do the SMA Community think about screening all newborn babies for 5q SMA?
Progress update on UK NSC work to assess newborn screening for SMA
Advocacy Lead, Portia Thorman, attends The International Conference on Newborn Sequencing
SMA on the first list of conditions screened for in Genomics England‘s Generation Study
SMA Health Inequity Survey
Not long left to submit your applications to join the Adult Advocacy Working Group…
Planning for a UK-wide SMA newborn screening pilot to start later this year
Adelphi Values Interview Study – Physical Ability: What is important to you?
Research into the views of the SMA Community towards newborn screening for SMA in the UK
