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Planning for a UK-wide SMA newborn screening pilot to start later this year

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Treatments & Research

Adelphi Values Interview Study – Physical Ability: What is important to you?

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Research into the views of the SMA Community towards newborn screening for SMA in the UK

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APPG for Muscular Dystrophy: Newborn Screening for Rare Conditions

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Calling for Progress on Care Coordination in the UK

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