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SMA UK at the International Scientific Congress on SMA 2024

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Treatments & Research
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Empowering Smiles: Lyla’s Journey with SMArt Moves 1.2 Grant

Advocacy
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New Study Confirms Clinical Effectiveness of Newborn Screening for SMA, and an Update on the SMA / ISE Partnership Board

Advocacy
Information
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Roche Provides Community Update on Risdiplam Data, including Tablet Formulation

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Treatments & Research
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Office Closure for the Easter Break

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Sarah and her Sparkling Wheelchair Upgrade with SMArt Moves Grants

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Thames Valley Pilot Study extends beyond the Thames Valley and finds a new name, due to enthusiasm for newborn screening for SMA in other places

Advocacy
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Disability Action Plan 2024

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Final call for responses to survey: What do the SMA Community think about screening all newborn babies for 5q SMA?

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Surveys

Updated guidance on Risdiplam

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Treatments & Research