This website google translation is automatic. Our information refers to health and other services in the UK. Before changing any care or treatment, please talk to your doctor about what you have read here. We hope you find the translated pages useful.
Information
Information
Disability Action Plan 2024
Advocacy
Information
News
Final call for responses to survey: What do the SMA Community think about screening all newborn babies for 5q SMA?
Advocacy
Information
News
Surveys
Updated guidance on Risdiplam
Information
News
Treatments & Research
Roche Provides End of Year Community Update
Information
Treatments & Research
Office Christmas Closure
Information
News
Republic of Ireland adds SMA to the newborn screening blood spot test!
News
Information
Treatments & Research
Progress update on UK NSC work to assess newborn screening for SMA
Advocacy
Information
News
Treatments & Research
SMArt Moves: Empowering the SMA Community through mobility.
Information
News
Advocacy Lead, Portia Thorman, attends The International Conference on Newborn Sequencing