Information
Information
Disability Action Plan 2024
Final call for responses to survey: What do the SMA Community think about screening all newborn babies for 5q SMA?
Updated guidance on Risdiplam
Roche Provides End of Year Community Update
Office Christmas Closure
Republic of Ireland adds SMA to the newborn screening blood spot test!
Progress update on UK NSC work to assess newborn screening for SMA
SMArt Moves: Empowering the SMA Community through mobility.
Advocacy Lead, Portia Thorman, attends The International Conference on Newborn Sequencing
