Disabled Children’s Partnership – New Campaign: “This is Social Care”
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Information
SMA Health Inequity Survey
New Survey: Patient feedback around development of a Neuromuscular Complex Care Centre (NMCCC) in the North East
Not long left to submit your applications to join the Adult Advocacy Working Group…
Research into the views of the SMA Community towards newborn screening for SMA in the UK
APPG for Muscular Dystrophy: Newborn Screening for Rare Conditions
Novartis presents data on long-term treatment with Zolgensma
Taldefgrobep Alfa Receives FDA Fast Track Designation for SMA
ROCHE Community Update – SUNFISH Trial
NHS England Provides Further Guidance around Definition of Non-Success of Zolgensma
