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SMA Europe, in collaboration with Roche, has now shared the meeting report from their “Nutrition in SMA” workshop, held back in November 2022.

The workshop allowed patients, caregivers and expert panellists to define current unmet needs and the next steps to address these gaps. The report comprises topics and discussions on feeding support, weight management and measurement of swallowing and feeding.

Read the report >

To find out more on this subject, you can watch our webinar about diet and nutrition in SMA, which was recorded back in July this year, with Maxwell (a young adult who has SMA Type 2) speaking to Dr Graeme O’Connor (Research Lead for Dietetics at GOSH).

You can also find further information in the Living with SMA sections of our website:


If you’d like to share any of your personal experiences or tips around eating, diet and nutrition in SMA, please email our Information Team:

If you have any questions, please contact our Support & Outreach Team: