Information
Information
NICE Committee Meeting on Intrathecal Onasemnogene Abeparvovec for SMA: October 2026
Preliminary Results from Barriers to Exercise Survey
Nusinersen approved in Scotland for babies with SMA before symptoms appear
Seeking Participants: Research into Liver Responses Following Zolgensma
Changing the Story on Unpaid Care
A Milestone Built by Many: Thank you to everyone who helped move treatments and newborn screening for SMA forward!
Newborn Screening for SMA Takes Another Major Step Forward
Help shape the future of SMA hip care, exercise and physical activity
SMA Care UK Annual Meeting brings together the UK’s SMA community to shape future standards of care
