Skip to content

Although there’s currently no cure for SMA, drug treatments are now available.

These pages tell you about any NHS-funded drug treatments, any in the pipeline, and other related topics. Whatever the treatment, it remains vital that anyone who has SMA also has appropriate care and management based on assessment by and discussion with their clinical team. Though some recommendations are now changing, the internationally agreed Standards of Care for SMA remains a useful reference point.

SMA UK lead on collating and submitting comments on the MTA EAG report in collaboration with Treat SMA and MDUK.

Advocacy
News
Treatments & Research

SMA UK at the International Scientific Congress on SMA 2024

News
Treatments & Research
Image shows the SMA Europe logo - white text on a yellow background

Roche Provides Community Update on Risdiplam Data, including Tablet Formulation

News
Treatments & Research
Image shows the Roche logo in white on a dark blue background.

Major concerns over the future of adult neuromuscular care in Northern Ireland

Information
Treatments & Research

Updated guidance on Risdiplam

Information
News
Treatments & Research

Roche Provides End of Year Community Update

Information
Treatments & Research
Image shows the Roche logo in white on a dark blue background.

Republic of Ireland adds SMA to the newborn screening blood spot test!

News
Information
Treatments & Research

Progress update on UK NSC work to assess newborn screening for SMA

Advocacy
Information
News
Treatments & Research

Eating, Diet and Nutrition in SMA

Information
Treatments & Research

SMA on the first list of conditions screened for in Genomics England‘s Generation Study

News
Advocacy
Treatments & Research