Thames Valley Pilot Study extends beyond the Thames Valley and finds a new name, due to enthusiasm for newborn screening for SMA in other places

Advocacy

News

Monday, 19 February 2024

Disability Action Plan 2024

Advocacy

Information

News

Tuesday, 6 February 2024

Final call for responses to survey: What do the SMA Community think about screening all newborn babies for 5q SMA?

Advocacy

Information

News

Surveys

Wednesday, 24 January 2024

Updated guidance on Risdiplam

Information

News

Treatments & Research

Monday, 18 December 2023

Office Christmas Closure

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News

Tuesday, 5 December 2023

Republic of Ireland adds SMA to the newborn screening blood spot test!

Information

News

Treatments & Research

Monday, 27 November 2023

Take Part: Share your experiences of SMA with healthcare decision-makers

Advocacy

News

Surveys

Thursday, 26 October 2023

New survey: What do the SMA Community think about screening all newborn babies for 5q SMA?

Advocacy

News

Surveys

Monday, 23 October 2023

Progress update on UK NSC work to assess newborn screening for SMA

Advocacy

Information

News

Treatments & Research

Friday, 20 October 2023

SMArt Moves: Empowering the SMA Community through mobility.

Information

News

Friday, 13 October 2023