During SMA Awareness Month 2022, the families of Hattie, Esmé and Lily shared quotes and photos of each of them:
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Ezra is six and has SMA Type 1, he is having Spinraza.
Ezra’s story>
Russ shares his experiences of granddaughter Georgie’s diagnosis of SMA, and the journey the family have been on since.
Kym shares her experiences following receiving her son, Rayne’s, diagnosis of SMA Type 2.
David reflects on the close relationship his sons Chris (who has SMA) and Alex (who doesn’t have SMA) had while they were growing up.
